Friday, February 14, 2014

Feed & Grow

Happy Valentines!!!



The babies are quickly approaching 36 weeks gestational age this Tuesday, 2/18/14.  It is hard to believe that by then they will have been earthside for two months!

This was a big week for William.  Two days ago he made the big move over to the Continuing Care Nursery (CCN), took a bottle and breastfed, all for the first time (click here to see William on the bottle for the first time).  He is now in the same area as Gracie and Thomas.

CCN is the where the babies are described as being on the "feed and grow program," and that's exactly what they do: eat eat eat and grow grow grow. William and Gracie just hit 5 pounds and Thomas is moments away from 6.  I think the boys are seeing who can grow a triple chin first.  Since they are better breathers now they are able to take the bottle and/or breast feed.  Every 3 hours they are assessed to see if they are able to do this, if not their food is given via NG tube. When they are able to take all of their feedings without the use of the NG tube and have no major oxygen needs, they will be ready for discharge from the hospital. Right now the boys are both still on oxygen and each day we try to wean them off of it. Gracie has been off oxygen for over a week and we no longer monitor her oxygen levels.  The main task she needs to accomplish before discharge is to nipple all her feedings and no longer need the NG tube. 

My role in the feed and grow program is to come up with the milk. I currently get about 30 ounces of breastmilk a day from pumping and I have been freezing this milk ever since the babies were born. As of two days ago their food needs have surpassed what I am able to produce by 10 ounces a day and it is showing as the babies are getting chunky.

Thomas is 5 lb 13.5 oz
William is 5 lb
Gracie is 5 lb 2 oz
Cienna is 3 lb 5 oz

Cienna is coming along at her own tiny pace.  She is small and so delicate but bright, alert and one active little girl.  One day respiratory therapy came to check on her and she had managed to pull herself out of her nest and roll over to the isolette window and was looking out at all the activity in the room. (Click here to see a short video of her from today.) She and William had their eye exams yesterday to check for retinopathy of prematurity (ROP).  Along with Gracie and Thomas, she is in the clear!  William has early ROP but at his age it will probably resolve on its own. We will continue to monitor him.


A huge THANK YOU to each of you for your love and support that is given in so many ways!  From watching the dog when Ben is out of town to sending a positive thought or prayer our way, your involvement has meant the world to us and eased the challenges of day to day NICU life.

























Tuesday, February 4, 2014

50 Days!

Fifty days old!  But today also marks 34 gestational weeks.  Today is the day we were hoping our babies would be born. Instead they have been learning to navigate life in the real world and they just amaze us! 

Most exciting news is that Gracie and Thomas are no longer in intensive care! They were moved to Continuing Care Nursing (CCM) on Sunday.  Gracie has been completely off of all oxygen support and breathing on her own for 72 hours so far . Thomas is on 1 liter oxygen from the wall, free from the vent and doing well.  He and Gracie have been periodically nursing with a bottle and working on developing their "suck, swallow and breath" skills and today they both got to try nursing from the breast.  In addition, both have been able to regulate their own temperatures, wear clothes, and be swaddled.  This has not come easy.   In order to graduate to CCM a baby needs to be completely weened from the ventilator and be out of critical condition in terms of sickness.  William and Cienna are well on their way, too.  Tonight William is going to wall oxygen and Cienna is a couple days behind him.  

There have been some challenges.  Last week Thomas and Cienna both got nonMRSA staph infections. Thankfully the infections were caught early and treated with Oxacillin. However, Cienna's infection initially got into her bloodstream so she will be on antibiotics a little longer than Thomas.  Both babies are now perky and responding well to treatment.

Despite Cienna's setbacks (she is the littlest and had intrauterine growth restriction), she has just reached 3 lbs! Yesterday she had her eyes wide open and avidly sucked her pacifier for 25 minutes.  No doubt she will be ready to nurse when she is fully off of the ventilator.  

They are also plumping up, current weights are...
William  4 lbs 3 oz
Cienna   3 lbs 1 oz
Gracie    4 lbs 5 oz
Thomas  4 lbs 14 oz